Neuros and IEP

Colin's neurosurgery appointment was uneventful just as promised, and I am not complaining. He is healing fine and showing no signs of a redeveloping syrinx or tether. They will schedule him for the followup MRI sometime in June/July.

The IEP meeting went fine. Colin is doing really well. They have been working with him on lipreading this school year and he has made a lot of progress. They will begin working more aggressively, both in private sessions and the classroom on self advocacy. Colin has a lot of difficulty speaking up when he is having issues such as being able to hear, etc. Mostly because asking someone to repeat or letting them know that he has difficulty means he has to call attention to himself, which he does not like at all. So, they will be working to make him interact more one-on-one in situations with adults he is not as comfortable with around the school so that he can become more comfortable engaging in conversation with them going forward. I know this might seem silly to some of you, but it really is a big deal. It is extremely important for him to overcome his shyness to some extent so that he is able to convey to the adults around him when there are inadequacies in his learning environment so that he doesn't fall behind simply because he is missing information and the instructor is unaware.

But, all-in-all, he is doing really well. He is reading on grade level and his teacher bragged about his outstanding problem solving strategies. She said he looks at problems in a way that none of the other students do. Extraordinary...no doubt!

Annual Spring Colds...sniff.

We all have colds. Jeremy and I for some reason seemed to have gotten the worst of it. Lucky us. Jeremy has been fighting it all week, and yet, has continued to go to work. He even worked double shifts the last 2 days. Love you! Thank you , thank you, thank you for always working so hard for us. The transition to this new job has been difficult financially, to say the least, and Jeremy has worked as much as possible, even 80 weeks at times...without so much as a single grumble.

My first full week of work went well. A little busy and a lot of hectic with the sickness and all, but I'm happy I chose to do this. I think it's going to be a great thing once I really get the hang of it.

Colin has a checkup with the neurosurgeon on Monday, which will be uneventful. They can't really tell us to much about his spinal cord from and external review, so the doctor will pretty much run down a list of questions, which we'll answer and she'll check how he's healing post-op...which is just fine. Most likely, we'll also discuss and start the scheduling process for his June MRI.

Next Wednesday is his IEP meeting...no idea what that stands for, honestly, at the school. To review the work his IEP teacher (not her title by the way) is doing as well as what the school can/is/isn't doing in regard to his unilateral hearing loss. This will be routine as well. Just a yearly, have to, kind of thing. My main topic of discussion: The routine letter generated by the school requesting my assistance in making sure Colin is missing as little school as possible. You know, it is difficult for them to teach the required curriculum if regular attendance is not encouraged on the homefront. If his absences are medical in nature, please provide the necessary document to prove so I know it was a mass generated letter, but it steams me nonetheless. The school is well aware that his absences are medical in nature. We do our best to make sure he misses as little school as possible. And, I still don't understand why, being that his counseler, nurse, his teacher, and the principal all received copies of the letter...I don't understand why one of them wouldn't have pulled it, noting that he does have a medical condition requiring obvious routine care. I know it's stupid, but when you are working so hard to be the best parents you can and juggle it all...it really sucks when someone questions your ability to do just that. Even if it was unintentional. I'm done ranting. It's been bothering me for weeks.

This week has been long and exhausting to say the least and ending it sick stinks.

Easter Pictures.

It appears that I didn't have my flash on Easter morning, so most of the egg hunt pictures didn't turn out. Here are some from the day.







Our obsessively clean baby, picking fuzz, etc. from her feet. :)


Notice the pistol. Ha! :) She was aiming at Colin of course.

I've been neglecting my blog.

No idea why. Just have been. So this post will be a schloo of updates.

The main man doc from Cali e-mailed me back. He is very interested in taking a look at Colin to assess the situation. He may provide the same answer as our current doctor, but it will be peace of mind if nothing else. Now we have to work out insurance logistics...ugh...and figure out when to schedule the appointment. We already have a visit scheduled with my Dad in July, so that'll probably be it. Hate to wait that long, but obviously can't really just take off to Cali. I'll cancel the May 1 surgery for now...and figure the rest out later. Never got around to calling local docs for a second opinion yet, still on the to-do list.

I have lots of cute Easter pics, I'll post those tomorrow. The kids of course had a wonderful weekend and the holiday itself was great.

Chloe is adding word after word and finally says Ma Ma!!!!!!! Yippee! So happy. She also says a dun (all done) and pup up (puppy). I love it. She is so sweet.

I haven't actually started working yet, but tomorrow is supposed to be the day. Wish me luck!

April Showers Bring...

Termites. So, when it rains it pours. We found out on Tuesday that we have termites in our basement. We've been having a little leaking in the corner of our laundry room, so Jeremy went down to remove the carpet and assess the situation. His discovery: Termites. The pest control guy came to verify Wednesday, and they will begin treating before the end of the month. Between the water and bug damage, we will be replacing a great deal of drywall, trim, and obviously the carpet will need to be removed. We will most likely also have to have a new floor poured to eliminate the cracks causing the leaking, and the list goes on. Yuk.

I Got a JOB!

In less than a week from getting my final results, I received a job offer! And, it happened to be with my #1 choice of companies to work for! And they offered me a little more money than I was expecting! So, I'll be working on an oncology account, which I think will be okay. It happens to be an area that I struggled with in the course, but I'll take that as a challenge. I'm so excited to get started! Jeremy and I are going to spend the day getting my office set up and ready to go. Interested in being an MT? Check out this site. In exactly six months, I completed the course and got a job from home! I'm so happy I decided to do this! I'll never have to go work in an office again! Yipee!

Measles...what?

What are the odds? The vaccination Chloe got to keep her from getting the measles, gave her the measles. It's obviously a milder form, but the measles nonetheless. Here are a few pictures. The bumps are hard to see, but there are hundreds there. If you double-click on the picture, you can see them better.




She doesn't seem too bothered by the actual bumps, she actually hasn't really even noticed them. Although she definitly is sleeping a lot and is a little crabbier than usual.