Colin's neurosurgery appointment was uneventful just as promised, and I am not complaining. He is healing fine and showing no signs of a redeveloping syrinx or tether. They will schedule him for the followup MRI sometime in June/July.
The IEP meeting went fine. Colin is doing really well. They have been working with him on lipreading this school year and he has made a lot of progress. They will begin working more aggressively, both in private sessions and the classroom on self advocacy. Colin has a lot of difficulty speaking up when he is having issues such as being able to hear, etc. Mostly because asking someone to repeat or letting them know that he has difficulty means he has to call attention to himself, which he does not like at all. So, they will be working to make him interact more one-on-one in situations with adults he is not as comfortable with around the school so that he can become more comfortable engaging in conversation with them going forward. I know this might seem silly to some of you, but it really is a big deal. It is extremely important for him to overcome his shyness to some extent so that he is able to convey to the adults around him when there are inadequacies in his learning environment so that he doesn't fall behind simply because he is missing information and the instructor is unaware.
But, all-in-all, he is doing really well. He is reading on grade level and his teacher bragged about his outstanding problem solving strategies. She said he looks at problems in a way that none of the other students do. Extraordinary...no doubt!
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